Wednesday, June 30, 2010

Unscheduled Freckles

I think I might be losing my favorite therapist... at least temporarily. He is the one that always asks how I'm doing as he's putting The Mask on. He is really nice and has a very empathetic voice. Anyway, he said something that didn't quite register with me until I left the center. He said, "I'll probably see you again." I thought, well yes, I usually see you every day or at least every other day. But I didn't say anything. Then I remembered we were talking the other day about how much he works and he said he's got a vacation coming up. So, hopefully he is about to start that long awaited vacation. He certainly deserves it.

Meanwhile, for me, July is starting and I am more than halfway through treatments, and it looks like I have nine left. I am not completely sure about that because technically my scheduled calendar has me booked up for fourteen more sessions, but I was told that those were booked just in case we needed them.

Saw the doctor today and told him about the Magic Mouthwash debacle. He seemed a bit surprised that my sore throat was gone, and wondered if maybe it was more than the radiation that caused it in the first place. I didn't think so because it wasn't like a normal virus sore throat. Of course Mom attributes the cured sore throat to her prayers.

The doctor didn't note any significant changes in the lump but mentioned that I'm getting a nice tan on my neck... which I have also noticed, along with lots of new freckles.

Tuesday, June 29, 2010

Luckiness

Today wasn't as gold as yesterday, but not bad all the same. At least we didn't have to worry about parking since we found a great spot as soon as we got there. Good thing too, because we were running a little late.

The Mask was not tight at all today and I was able to relax nicely. I think it most definitely has something to do with the pillow and where I situate my head when I lay down. Mom said that I was in there a long time. It didn't seem much longer than usual to me.

I know I am very lucky. I have had no real serious or painful side-effects or symptoms from the cancer. I don't have to be on pain medications daily. The only thing that slightly bothers me is occasionally it feels tight around my neck, like I'm wearing a too tight turtleneck or have a scarf tied around my neck. But no real pain. The sore throat has gone away. It only lasted for about a week.

Yes, very lucky.

Monday, June 28, 2010

Some Days Are Gold

I wish every treatment was as easy and fast as today's was. I don't know why it went so well, or why I had zero anxiety but it sure was nice. Only bad thing was that we didn't get a good parking spot when we got there. That's the negative thing about having morning appointments and not late afternoon/evening appointments.

My guess as to why today went well was because my morning wasn't rushed and I didn't have to wait very long to get in. In fact, I think I only had to wait about three minutes. We usually like to get there early in case we can get in early. It doesn't happen often, but it happens. And then when the therapist brought me in, I made sure that my head was in the molded pillow thing perfectly when I laid down. It seems that if I don't get my head situated right, then everything is off, and The Mask won't feel right... usually too tight either up at the forehead or down around the mouth and neck. Also, she knew my routine and allowed me to lay there and take some deep breaths and relax before telling her when she could attach The Mask. And then, the treatment seemed to go especially fast. Maybe they fixed the machines last Friday?I don't know, but it was a smooth day and I didn't feel as tired and spent as I usually do afterward. I just never know what kind of day I'm going to have.

Sunday, June 27, 2010

Wild Turkey Pooh

Remember when I warned you about the goose poop at the Maplewood Cancer Center? I forgot to mention the other day that we saw three enormous wild turkeys in the parking lot. So, that ain't only goose poop you have to navigate around, I don't think.

Friday, June 25, 2010

It's All Good

I woke up early (for me) because I had an early radiation treatment scheduled for today and got all ready and then got a phone call telling me that the machines had gone down and so my appointment was canceled for the day, and we would just add another day onto my calendar of appointments. Happy day, a nice three day weekend off! More good news is that my throat is feeling much better today. I am just lucky that I'm not one of those cancer patients that has to drive all the way in from Wisconsin. Imagine having driven all the way in and then finding out your appointment was canceled?

Thursday, June 24, 2010

Rituals

We all have our rituals... patterns of behavior that help us make it through the day or certain situations. Today at my radiation treatment I laid down, got my head situated, and they (two of the therapists - I learned they are called therapists, not techs), got my hands in the cuffs and I lowered my knees, and then they started to put The Mask on. They were talking between themselves about something or other, which I wasn't paying attention to. Then the male therapist apologized and asked if they were putting The Mask on too quickly, and mentioned that I normally like to take a bit to catch my breath and relax. He remembered I have a ritual that helps me cope with The Mask. So, they didn't finish attaching it to the board and let me take my few deep breaths and let them know when it was the right time to put it on. They have so many patients, yet they manage to remember my little ritual. There is another therapist, named Brian, who always asks me if I am doing okay and if I'm still with him, as he's putting on The Mask. I wonder if they have to go through getting a mask themselves so that they can relate to what it is like or not?

Sometimes, when I first get The Mask on, I feel like I could die... or pass out... or freak out, or all three. But then I work my way through it and start to consciously try to relax and go with the flo.

After the treatment was done, and the therapist helped me sit back up, I pointed to this pink slab that was leaning up against the wall and asked him what it was. He said that it's for patients that have to lay on their stomachs, mostly breast cancer patients. There is a place for them to put their face, and two cut outs (only one was open) for the breasts so that the breast can be exposed for treatment. Oh boy, just when I think I have it bad with The Mask...

Back at home, before lunch I took some of the Magic Mouthwash we got from the pharmacy today. I drank the tablespoon of it with a straw, which they recommend if you are going to swallow it, so that it goes straight to coat your throat. Well, it coated it, and soon after I started to gag and then magically vomited it back up. It numbed my throat a lot, but I think maybe because I had an empty stomach, and had already been feeling a bit nauseous, it didn't agree with me. It was very bitter tasting as well. I would rather have the sore throat than go through that everyday, but I will give it a try again another day. Maybe before dinner.

Wednesday, June 23, 2010

Magic Mouthwash and White Castle's

It's Wednesday, almost Thursday already... I want time to go fast so I can be done with treatments but I do not want my summer to fly by. I am enjoying every second of this summer. I love the storms we've been getting, and the cloud formations have been exciting. It doesn't take a whole lot to please me anymore.

Treatments have been going well. Each day I go however I don't know how I will feel under The Mask. Monday was good and I felt so relaxed. I almost fell asleep. Tuesday and Wednesday weren't as good and I don't know why. Some days I guess I just feel more anxious than others. It is so nice having mom there for support.

It was Doctor day. Because my throat has been hurting, we had two prescriptions filled there at the Cancer Center for something called Magic Mouthwash, which you take before meals to numb the throat, and another one that you take after meals, to help healing. I asked the doctor what causes the pain... is it the radiation burning your throat, since it doesn't feel like the kind of sore throat you get with a cold? He said yes, that was right. He said that you can just swish the mouthwash around in your mouth but because the pain in the throat is centralized more at the left side of the throat and deeper, it will help more to swallow it. The pharmacy wanted to make sure they had the right concoction so we decided to wait until tomorrow to pick it up instead of waiting any longer.

Today we brought lunch over for Auntie June after my treatment. It is her birthday on Friday. We brought White Castle's (please don't tell Dan, as she is keeping that a secret from him!). We also had, besides the burgers, onion chips and chocolate shakes. Since I don't love the onions and pickles, I scrapped those off my burgers and let Mom and Auntie June fight over them.

Sunday, June 20, 2010

Paper Dolls and Codeine


Today was Father's Day... the first one without my dad. He always loved Father's Day because he usually got money from everyone, and he used it at the casinos.

Lots of family were over to visit. I made banana bread and a cake (which Dad would have loved, even the banana bread). Mom made barbecued beef, yum. Everyone brought something to share. The weather was beautiful and it was a really nice day. Anna brought some paper and new colored pencils, so I suggested we make some paper dolls. She thought that was pretty okay, and she had lots of creative ideas. Oh, and when we were eating, I came out with my paper plate of food and sat on the bench next to Ellise, and she got up and fled to her mom. That was my answer to, "Can I sit by you, Lisee?" Then darling little Nik, who was sitting on the other side of the table said, "I'd sit by you if I was over there." Just too sweet! So, he came over and dined with me. I got a smile out of Ellise later, so no worries.

I noticed all day that my throat hurts when I swallow. First major side-effect from the radiation - they warn you about this. When I swallow food it sort of feels like I'm swallowing a rock, or at least a stale marshmallow. I'll take a codeine tonight to see if that helps, but there are mouth rinses you can make, which I'll also try... tomorrow.

Friday, June 18, 2010

TGIF

Today was the end of my third week of radiation treatment for the Adenocarcinoma cancer in my neck. 13 down, 16 to go.

Today was a pretty good session. No anxiety and I think my head was in the mold correctly so the mask didn't fit so tightly like it did the day before.

My sister Teri came to the cancer center to pick up mom's gold tooth fillings to cash in at her gold party, and to see us. Ah, gotta love this economy... What's next, parties to sell your kidney's? ;)

Thursday, June 17, 2010

Beauty Bumps

I forgot to mention yesterday that the doctor felt the lump in my neck and said he thought it seemed to be getting softer. It doesn't feel softer to me but he's the expert. For me, sometimes it feels smaller sometimes not. It kind of depends on which way I turn my head, etc.

I took a Tylenol 3 for the pain in my tooth, so I am falling asleep here at the keyboard, so I'll keep this one short. Jeannie, Sara, Suzie and Amelia came to visit today. Sara had her two kids, Mattie and Isaiah, Suzie had her two girls, Caitlyn and Ava, and Amelia had Mackenzie, her cousin's baby girl whom she's taking care of this summer. I don't know how they feel, but I love spending time with them because they are so funny and they make me laugh, and they don't seem to mind my jokes. And the kids are adorable, of course.

Radiation today kind of sucked. I don't think I had my head in the head mold the right way and The Mask was extra tight. Thankfully the session was pretty fast, and no computer reboots. When I sat up, Brian the tech said that I had "beauty bumps". Sure enough, I felt my forehead and the mask had made an impression into my skin and left little raised bumps from the holes in The Mask. Yeah, like I'm not beautiful enough! ;>

Wednesday, June 16, 2010

PET My Scan


Things were running late today at radiation. The poor woman ahead of me was having her first session, perhaps her set up session, and she had to be on the board for a long time and I guess she had a really hard time. I was brought back there and asked to sit down and wait. I saw them bring in a wheelchair and one of the nurses. When they wheeled her out she looked okay, but maybe laying down for a long time made her too dizzy to walk. I know that when I sit up from the board I am dizzy for about five seconds, and I wait about fifteen seconds before I get up and go. Anyway, I totally felt bad for her.

My session went pretty quickly... then it was time to see my radiologist for my weekly Wednesday appointment with him. As soon as he comes in Mom questions him, "Is it bad news?" I didn't even know what she was talking about for a moment, and he didn't either. She then asked about the PET scan results. He said that it looked okay and he didn't see anything else besides the lump on my neck. Yippee. Of course, Mom cries and says she has been so worried and has been praying. A moment later I say, "I sometimes wonder if we are even related, because I had barely given it a thought (since last week)." The doc looks up and smiles and then says, "Must be because she does all the worrying for you."

That was so funny and so true! But honestly, I don't worry because I know it is out of my hands and worrying only makes you sicker and it is a waste of energy. I guess it's just how I deal with things. We all do it differently.

Tuesday, June 15, 2010

Jackalopes


Today was a much better day at radiation therapy than yesterday. No computer problems and no waiting really. The Mask was feeling tight, but not too bad. I went by myself today... it was strange not having mom there with me. The reason I was alone was because I was going to meet friends for dinner up the street at Chili's after my treatment.

Sometimes, when I feel crappy about my life and myself, I just want to stay home and never go anywhere. But then I couldn't see my friends like I did today, and I would miss that. It was nice spending a couple hours with Deb, Sue and Beth. They always have some funny stories and news to catch up on. Thanks for being such great friends to me always!

One little story... I sent out an email game called Scategories where you had to give a word that started with the first letter of your last name, and Beth filled it out and sent it back to some of us, but also included her sister on the email. One of the questions was "name an animal". Beth's last name is Johnson and she said, "Jackalope". I emailed back, hitting reply ALL, and said, "Beth, a Jackalope isn't a real animal LOL", and she replied back, "You are correct - I wonder where I heard that word before?" And I replied back (to all), "Jackalopes are a legendary creature famous out in the northwestern states. When I went to Jackson Hole Wyoming, they had them all over the place. On T-shirts and on the walls, etc." So, anyway, tonight Beth tells us that her sister kept calling her and asking her why was she getting these dumb email about Jackalopes and she didn't care if they were legendary creatures. I realize now that her name is Deb on the emails, and so I didn't notice her name and thought it was my other friend Deb. Her poor sister!

Oh, and Deb had something comforting to tell me after I told them about how on Monday I thought they might have forgotten me in the radiation room. Apparently her sister Nancy was at a doctor appointment and was waiting in the room for her doctor to return and he never came back and finally she looked out and everyone was leaving and they were closing the place up. So, I guess it's not such a far-fetched possibility after all. Thanks, Deb!

Monday, June 14, 2010

Hello... is anyone there?

Today was not so good in the radiation room. The computer broke down and had to be rebooted so I was in there, under The Mask, for almost 45 minutes. I was laying there and nothing was happening and nothing was happening and nothing was happening, then I heard one of the girl's voice over the intercom telling me they had to reboot the computer and I'm doing a great job. Great job, indeed. Only it started out bad in the first place for some reason... The Mask was feeling tight today and for some reason I was on edge from the get go.

After hearing her voice, I expected the machines to start moving soon, so when they didn't, and I was just laying there in the room with nothing happening I started to panic slightly. I would relax, breath deeply, and then kind of feel spazzy, and repeat... and eventually started to think they might have forgotten about me. Rationally I knew that was very, very unlikely, but like I told them later, when they finally did extract me from The Mask, your head starts to mess with you under that thing. I started to wonder how I could rip The Mask off, or at least start flailing my arms and legs and scream bloody murder.

Oh, and who did I see as I was walking back to the room?... my radiologist! So, I guess I have to believe my sister now.

Sunday, June 13, 2010

Frosties, Noodles and Corn on the Cob

I had a really nice weekend, which went way too fast. First of all because there is no radiation on weekends, and then, on Saturday Allie and Erin came to visit. I sometimes still can't believe they drive! They brought us Frosties and they provided us with lots of entertainment, as usual. I still miss spending my days with them, so it is always a treat to be able to spend time with them--especially considering how busy they are all the time with school and friends and life. Of course we played that silly drawing game we always play!

Then in the evening, Jackie, Andrew, Sophie and Padraig brought us dinner from Noodles and Company. I had never had been there before. I ordered the Japanese Udon noodles which were to die for. Mom also made some corn on the cob, and Padraig had the time of his life sucking on a cob (sans corn). Sophie and I laughed our butts off when he started screaming when they took it away from him. At the end of dinner there was more corn on the floor than the table.

On Sunday Teri, mom and I went to see Jay, Alicia and the kids. It's crazy... we went down there last Sunday because Nik was going to go in for surgery on Monday (he ended up having it on Tuesday), and here we were only a short week later and he's home already and you would never know he had had open heart surgery. The only things he can't do are ride his four wheeler and do things like jumping and carrying heavy things and anything that might cause strain. Other than that he was the same old Nik. Right when I came in the door he wanted to sit on my lap and tell me all about the things he can and can't do. Anna showed us the Lego house she made--we couldn't believe she made it herself, but she promised she did. And the little one was insane as always.

It was good that Teri was driving because I was having a hard time keeping my eyes open on the drive home.

Friday, June 11, 2010

That Was Fun!

Nik left the hospital in record time and is back home with his sisters. What a trooper!

I was reading my new issue of Rolling Stone and pondering what is to become of me since I am not into vampires at all... what will I watch on TV this fall?

Anyway, this morning when I woke up my shoulder and neck were very stiff and a bit painful. I think I might have to learn a new way to sleep. I'm too old to do that.

Today at radiation (8 down, 27 more to go) was kind of fun because my wonderful sister Teri came with and went in to see how everything goes down. She watched them snap The Mask on then left the room with them and watched how they do the imaging and treatment. She said that my doctor came and watched. I don't believe her. But she insists that it was him. I've never seen him around there. Never.

She's so funny. When we were saying good-bye she kept saying something like, "that was great," or "that was fun", and then, "... well, no... you know what I mean." Yes, I do. Thanks for being such a wonderful sister, Sis!

On the drive home I asked mom if we could stop in to see Auntie June. I felt bad because I haven't been to see her in so long. We had a fun time talking about her Meals on Wheels meals, my hair, mom's hair, bruises on their arms and belly's, adult diapers, and then we had fun testing out her new grabber thing. Then her phone rang and we all jumped and screamed. Then we laughed about that. It was good to see her.

Wednesday, June 9, 2010

Cabo

It's Wednesday night already. I haven't been online since Monday--I know, it must be some kind of record.

Nik's surgery went well and you can read his update here at his Caringbridge site. This is him having a very green Popsicle. Soooo happy he is doing okay!

Today was a long one. It started at seven thirty this morning at the cancer center for my radiation treatment. I am definitely getting used to The Mask. Either that or my head is shrinking now. I actually think I've learned how to relax and make it more tolerable by making sure my shoulders are being stretched down as far as possible with the hand straps. This makes it less tight around the neck.

After radiation it was time to see my radiologist, who I see every Wedndesday after treatments. He always greets you with a handshake, which is lovely. And he always has on a gorgeously colored tie and shirt. His nurse today was another nurse that remembered me from 2007. I see familiar faces from then every time I go there.

After a short visit with the doctor it was back out to the lobby and signing in again on the paper sheet (not the computer, which I sign in to for radiation). I was scheduled to have a PET scan at nine. While waiting for them to bring me back for that, two women came in with a dog. They were twins, but one was a patient and the other was the owner of the dog. Right away when they came in, while her sister changed into her hospital gown (which usually means you're a breast cancer patient), the other sister brought the dog over to us and asked us if we'd like to say hi to her. Of course we did. She was a black and white border collie named Cabo (because they liked visiting Cabo San Lucas). What a sweet dog she was. We petted her for a bit and then she went back to her seat and soon her sister came out, but then soon went in for her treatment. After a while of chatting with the sister, about cancer and other things, Cabo decided she wanted to come back over to see me. I petted her and scratched her ears a while, then she went back and laid down to rest at the feet of her owner. A little later she did the same thing to mom. Then I heard my name being called.

PET scans are different from CT scans, though similar in that you usually have to fast (4 hours) and drink that delicious contrast mix. Pina Colada flavor today. Don't get the banana, I promise you won't be sorry. The contrast drink is a lightly flavored chalky concoction. For the PET scan you sit in a room by yourself, in a comfortable recliner and drink half of the bottle of contrast. Then the tech came in and gave me the Radiology Pharmaceutical shot. This takes time to travel through your whole body, so you sit in the room with the lights dimmed and drink the rest of the contrast and wait for them to come and get you.

When it's time, they have you visit the bathroom and empty your bladder. This was welcome since I had drank over sixteen ounces of water since waking up, as well as the whole bottle of contrast.

The PET scan is different from a CT scan in that you have to remain completely still and they wrap your arms up to your body, which help keep them still. This was not uncomfortable at all. At first I didn't like the head rest, which if you laid a certain way would come up over your ears. I adjusted so that it didn't do that. Your body goes through the donut shaped scanner and out the other side, then you are scanned in sections for about five minutes each section until your head comes out the other side. The PET scan is getting a more detailed and three dimensional picture. I don't really understand it.

Oh, the only crappy thing was that I had to take off my bra for the scan. You aren't allowed any metal at all, unlike the CT scan which you can wear a bra and pants with metal buttons and zipper, as well as jewelry. Though I had to take my earrings out for a CT scan recently, and usually if you have a zipper and metal button on your pants you have to slide them down around your hips. I guess it depends what part of your body they are scanning. I've had so many of these things I have lost count.

My blood sugar was low on account of the fasting and them wanting a low sugar for the PET, so I was a little shaky and hungry for lunch. I drove mom down to Hastings to meet her friend Rose for a trip to the casino, then I treated myself to some Culver's Cod fillets, yum!

P.S. If you are going to be at the Maplewood Cancer Center, please watch out for the goose poop in the parking lot!

Monday, June 7, 2010

Full Time Job

Nik's surgery was postponed until Tuesday--hoping they don't postpone it again. You would think they would realize that his family has to schedule taking off of work and arranging for someone to watch the other kids while his mom and dad are there at the hospital. It's not like major surgery is an appointment to get your teeth cleaned or something easily rescheduled. Oh well... just want it over with and for him to be okay.

We had two doctor appointments again today, so I took Mom out to her eye appointment with Dr. Rice, which she had scheduled for months, and then had to go back out to the Cancer Center across the street three hours later. It's a full time job, I tell ya.

Today's session was at 6:00 PM and they took me in almost right after I arrived, at 5:45 or so. Hey, I need about five minutes to mentally prepare myself for The Mask!

I was thinking my head had grown over the weekend because again The Mask felt super tight. When will I get used to this thing? You would think after having it on four times for fifteen minutes minimum, each time, I would be getting used to it. At least I took my deep breaths before they snapped it down this time.

They sent me to the other room today. There are two different rooms. I had been going into the one on the right. When I went in 2007 I had always gone in the one on the left... so it was deja vu today. I noticed it was cooler in this room. The tech said that he agreed and he talked to the manager and mentioned that the other room was too hot later in the day, and maybe it was because they didn't usually schedule late appointments for that room so the air conditioner might have been turning off at an earlier time. I hope that's the case and next time I go into the room on the right it is cooler.

I've been having some pain in my left arm and shoulder and that side of my neck. I don't think it's psychosomatic since I have noticed it before, and come to think of it, there were times before I found the lump that I felt pain there. It's not a sharp pain but more of a dull ache... the kind you might get if you hold something for a long period of time and you then put it down because you can't stand to hold it any longer because it hurts to. Does that make sense? But really, nothing too terrible to complain about that's for sure.

I am really enjoying the weather and though I don't really love having to drive so much, I am enjoying the beautiful trees with all the leaves and all the wonderful flowers people plant in the city.

Saturday, June 5, 2010

No cancer stuff today, yay.

I have a cute Nik story relayed to me by Jay.

Nik makes me play catch with him all the time. I
showed him how to throw the ball up in the air and catch it with his glove,
and how to throw a tennis ball against a wall. I told him that I had to do
that all the time when I was growing up because my dad was older and so were
my brothers and sisters. He was shocked and said "you didn't play catch
with Romy? I play catch with her all the time and she's really good."
Hee hee!!! Love that kid!

Mom and I visited Jay, Alicia and the kids today. Why does it rain every time we go down to Hastings? Grrr!

I brought bubble gum because the kids love it when I blow big bubbles and they smash them with their fingers to pop them. I have to say that Bubblicious bubble gum is the best for doing this because it doesn't stick to my face when they pop the bubbles, unlike the cheap stuff.

Miss Ellise was very intent on smashing as many bubbles as I could produce -- one time getting so excited that she jumped the gun and socked me in the face quite nicely. That kid has spunk.

Anna can now blow her own bubbles! Yahoo!

We went outside, after having some homemade pizza and some of that fermented mushroom tea for lunch (thanks Alicia & Jay!), to watch Nik ride his four wheeler. Ellise squealed with delight as mom and I cried our protests as he flew by VERY FAST. Of course he had a huge smile on his face as he whizzed by at the speed of sound.

I got a little sample of what Alicia has to deal with in her youngest one. We were sitting on the porch, which faces out to the beautiful back yard, which is essentially a cleared area surrounded by forest, and Ellise was climbing on the rail right in front of me. There was a pot of flowers hanging off the top of the railing and Ellise picked one of the flowers and showed me. Then she picked another one and let me smell it. Then she went to grab another one, and I told her she shouldn't pick any more flowers. She picked another. I told her, "No, you better not pick any more or they will be gone." Sure enough she reached up and picked another. She didn't care how many times I told her to not do that. She picked the basket clean. She does what she wants to do! She is hilarious.

I hope the photos I took of everyone turn out. Nik doesn't understand why you can't see the photos I take on my camera right after I take the shot. I have to tell him that I have a really old camera and I have to get the photos developed first.

Friday, June 4, 2010

My Big Fat Head

I'm glad it is Friday, which means two days off from treatments. We're going down to Hastings to spend the afternoon with Jay and Alicia and kids tomorrow. I have a present for Nik to take to the hospital with him when he goes on Monday because I'm not sure I'll be able to visit him there. Nik is going to have his third open heart surgery next week. Brave little Nik! He's so precious!

Today's treatment seemed to last as long as the previous one, which was suppose to be longer than normal. I don't know, maybe I was expecting it to seem a lot quicker... but it wasn't. I was the last appointment of the day for the machine they use on me. Joe rushed out as soon as I got to sit up. No time to walk dizzy Romy out today, haha.

When they went to put the mask on today I asked them to take it off before they were finished snapping it onto the board. I hadn't really been given enough time to relax on the board and catch my breath. So, they took it off and I took some deep breaths and got myself ready. I understand they probably had a long day and wanted to get going, but I needed a minute to settle down and prepare to have that thing snapped down on me. Every time I have to wear it I am surprised at how tight it is. Today I wondered if maybe my head grew bigger over night because it felt tighter than ever. I sure hope it doesn't get bigger over the weekend!

Thursday, June 3, 2010

Third time's a charm?

Not so much really. What can I say... I just really don't like wearing that mask. I had to wear it for an extra five minutes today. I'm hoping that tomorrow will be the quickest and that I won't have that same sense of dread I've been having when I first get it on. I tried to think about torture victims. That helped a little bit. Nobody hears their cries for help. I thought about Rosie Wirth (my sister-in-law's mom who also had to wear the mask). I know I am not going through a fraction of what she had to go through.

Yet I had all these complaints racing through my head... why is it so damn hot in this room? Maybe if I have them cut me some eye-holes it would be easier? Maybe a mouth hole so I don't have the mask resting against my lips? All really so stupid, because soon enough it was over and everything was fine again. I guess I am only human... but I'll try to do better next time.

My appointment was at 6:15 PM, which was kind of nice because nobody was there. Same time tomorrow.

Oh, by the way... I have a mission. A very serious mission. There is a TV set in the waiting room at the cancer center, and I have vowed that I will turn the station to The Food Network or Bravo or Animal Planet, or even the Golf Channel, if I notice that it's on Fox News, which it always is! Yes, that is my secret mission...

Wednesday, June 2, 2010

Radiation is my friend


Today I had my first radiation treatment for the lump thing in my neck. Don't ask me the name of it, I can never remember. On Tuesday my eye doctor asked me what it is called and I had nothing. I know the name of the cancer is Adeno Carcinoma but the name of the lump I don't have a clue.

When I had my planning session last week for these treatments, they made the mask I have to wear. (You need to wear this so that they can have a guide for where to point the radiation so it's the same each time.) They put the slab of warm wet pliable plastic over your face and shoulders and you wait for it to set and you wait for them to mark it up or whatever. They also take a CT scan, presumably to line things up, etc. Anyway, the fun part came when I was in the CT machine and started to feel panicky. I had been breathing with my nose only, so maybe that was making me light headed or maybe I was simply freaking out. The mask was warm, tight and constricting. I had my eyes closed. It was hot in there. I wanted it off.

That was not to be.

When I came out of the CT machine, the tech asked me how I was doing and I told her that I was starting to freak out. She sympathized but told me point blank that I had to keep it on for about 7 more minutes. She said she would stay by me and hold my hand for the rest of the time. Which was nice of her, and it helped. I started to breath through my mouth, as well as my nose, which also helped.

"They must use these at Gitmo," I commented, lamely. Bet she never heard that one.

When I was leaving she said that most likely my regular sessions won't be the fifteen minutes that I had the mask on during the planning session, but shorter. That was good news....

Flash-forward to today and what did the tech tell me? I'd be wearing the mask for about fifteen minutes. I groaned. She sympathized.

Her name is Erika, and she remembered me from 2007. What a sweetheart she is. I remembered her too. I also remembered Joe, who brought me in to the back where the machines are. Joe was also kind enough to let me hold onto his arm after my session because I got a little dizzy and almost tipped over (thank you big radiation machine for being there to grab hold of!)

I was surprised that today the mask was still as tight as it was last week. I thought maybe somehow it wouldn't be. Maybe it was the wet factor that made it so tight, but no, it was just as tight. When she said it would be fifteen minutes I sort of felt a bit of dread. I wondered for a moment if I could do this. Plus, before I came in, they gave me my schedule and I saw that I would be having 30 sessions. I didn't know if I could do this 30 times.

It was super muggy in the room, which didn't help. They snapped the mask on and right away I decided to make sure I was breathing properly. Deep and with nose and mouth. They took x-rays, so I think that is why it was fifteen minutes. I hope so anyway. I think the treatment itself is eight minutes. Thankfully, I didn't freak out this time, but it still felt like heaven when they took the suffocating piece of shit off.

Sitting up from the bed, which is basically a slab of some kind of hard back breaking material, I felt a bit light-headed... thus almost falling over on my way over to get my glasses. Tomorrow I will be sure to sit on the slab upright for a little bit before I venture off.

I've decided that it wasn't as bad as I was thinking it was going to be when I first heard Erika say "fifteen minutes" and when the mask first got snapped down. For the first couple of minutes I was thinking that this is finally going to be a test. This is really going to test me in ways I haven't been tested before. But now I have decided that I am going to think about people that have really been tortured. Those human souls that didn't have sympathetic technicians administering to them while suffering tortures of the unimaginable. Compared to that, this is playtime.